before it’s too late…

Posted on Tuesday 18 December 2012


One Last Chance for the APA to Make the DSM-5 Safer
Huffington Post
by Allen Frances
12/17/2012

Two weeks ago the Trustees of the American Psychiatric Association made the serious mistake of approving and rushing to press a DSM-5 that has many unsafe and untested suggestions. The reaction has been unexpectedly heated: dozens of extremely negative news stories, many highly critical blogs and a number of calls for a DSM-5 boycott in the U.S., England, France, Australia, Spain and Italy…

We are at the 11th hour. Is there a last-minute way for the DSM-5 to restore some of its lost credibility and save itself from the widespread rejection and ridicule that is being expressed by clinicians, the public and the press? A great deal of irrevocable damage has been done, but I have four simple suggestions that would help reduce the harm done by the DSM-5 and demonstrate that the APA has regained its integrity. Although the Trustees approved the broad outlines of the DSM-5, they did not settle the final wording. Last-minute editing of the DSM-5 can improve it significantly. Here are four simple steps that should be taken:

  1. The placement of a black-box warning in the text section of each of the dozen or so most controversial changes (e.g., temper dysregulation, grief, minor neurocognitive disorder, adult ADD, somatic, binge eating, behavioral addictions, etc). These would indicate the risks involved, tips on how to avoid overdiagnosis and an admission that the change is a hypothesis to be tested in a living DSM-5 document.
  2. Criteria sets should have a thorough final review to tighten them and remove ambiguities. If the somatic symptom disorder has gotten this far in such a problematic state, it is likely that many other DSM-5 criteria sets also cry out for careful editing.
  3. All the texts and criteria sets need a thorough forensic review. If any word in the DSM-5 can possibly be twisted in court, it will be.
  4. A surveillance mechanism with staff, funding and teeth should be set up to identify and counteract the DSM-5 changes that lead to the fads and excessive treatments I have been warning about.

I know that it is late in the game and that these are band-aids that can only reduce, not totally eliminate, the risks of the DSM-5. But they would constitute a big step forward…

On a personal note, it would be great for me if the APA were to provide its own realistic cautions concerning changes that the DSM-5 leaders have already acknowledged are no more than poorly tested hypotheses. If the APA takes on what should be its own appropriate cautionary responsibility, then I can relinquish my unpleasant role as constant prophet of DSM-5 doom. The sad truth is that all my dire predictions during the past three and a half years have turned out to seriously underestimate the degree to which the DSM-5 could get itself into, and cause, mischief. My final prediction: Unless the APA takes the time to tighten the DSM-5 and provide it with appropriate cautions, DSM-5 sales will be less than half what is projected. The DSM-5 will likely be a financial as well as a clinical, scientific and artistic flop. The APA has one last act to save the DSM-5 before the curtain drops.
Dr. Frances is a fairly humble guy, so I won’t linger on this point, but he has given a voice to something [that should’ve had a chorus] from inside the halls of psychiatry that will endure beyond the issue of the DSM-5. The DSM-5 Task force had a choice to make. It could’ve taken the on the flaws of the DSM-III and DSM-IV and wrestled with them trying to bring them closer to the reality of mental illness as we see it in our offices. Diagnosis should be based on what we know, not what we hope to find out down the road or what we wish we knew already. They chose the latter, trying to direct things rather than follow. They jumped on the idea that we needed to know that some grief becomes pathological. We’ve known that since Lindemann told us about it in the 1940s. They wanted to elevate Attenuated Psychosis Syndrome to a diagnosis rather than something too vague for clinical use, something we’ve known since Bleuler wrote it over a hundred years ago. They added a diagnosis, Somatic Symptom Disorder, that legitimizes an under-the-breath epithet "Crock," and puts people at risk of being discounted when ill – missing the point that diagnosis is something you do "for" a patient, not "to" them.

Dr. Frances is asking the DSM framers and the Board of Trustees to make some 11th hour, good faith changes that might soften the impact of some more blatant errors in judgement, and I hope they consider his suggestions. It’s easy to demonize psychiatrists. It has always been part of the package. I expect that Dr. Frances has the same problem I do. I know a lot of psychiatrists who do a lot of things right and who have had to survive in an environment of underfunding and difficult circumstances both within and without our ranks. It has been an environment that unfortunately fostered the growth of bad apples, and there hasn’t been much that could be done about that as they were supported by powerful industries. And this DSM-5 has been constructed behind closed doors, doors that should’ve been thrown wide open. But they weren’t. This was a time to reconsider, to rebuild, and the DSM-5 Task Force missed that opportunity.

The times are changing, and instead of becoming part of those changes, the DSM-5 positioned itself as to represent an approach that is running out of juice, rather than opening up some new doors that might lead to our future. Scientific paradigms are like that. After a period of primacy, they finally become right-sized and find their proper place. And the DSM-5 is no example of how that happens. But there is still time for them to at least acknowledge some of its limitations…
  1.  
    December 18, 2012 | 10:02 AM
     

    ” It’s easy to demonize psychiatrists. ”

    And I have done that. But you have helped me not to anymore. Thank you.

    Since I was thirteen, and meeting one for the first time when my Schizo-effective mother went through her first of many hospitalizations, I have been skeptical. He was a Freudian, I think. And then as a mother, when my own daughters began showing symptoms, I found out again that the system is so, so broken. The meds made things so much worse. We added paranoia, weight gain and tardive dyskinesia into the volatile mix. They are both much better now — off the meds. Their choice — they did the research, cheeked the meds, and educated me.

    But reading your blog has been very helpful and healing to me. You are not boring at all, at least when you write so honestly and insightfully about the crisis in your field.

    I only wish you would enlist the help of someone to organize your posts — not everything you write should be filed under “politics” — to make it easier to search your archives. But that is not your job, please just keep on speaking out. You are the wise counselor I wish I had in our terrible time.

    Blessings to you at this not very merry season. Karen

  2.  
    December 18, 2012 | 10:06 AM
     

    whoops, that should have been Schizoaffective. It is still very early here.

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