here-we-go-again?…

Posted on Sunday 7 December 2014


Mad in America
by Allen Frances, M.D. and Robert Whitaker
December 4, 2014

It’s there for all to read so I won’t try to summarize it here. I’d suggest reading it, actually reading it several times. Because it’s so familiar, I tended to skim it the first time through. And it deserves a more thorough reading. The other thing I would suggest is to pretend you are a psychiatrist if you’re not. And pretend you’re not a psychiatrist if you are. We’re in such a rut with all of this, that about all you’ll come away with is having rooted for your home team if you don’t do something to break the frame of your well-worn ideas or ideology.


I have a lot of respect for these men. Both have done something creative and courageous by running against the tide of the times. They’ve inserted themselves into the center of important debates that had grown monotonous, moved things into a much more productive though certainly no less divisive trajectory. I’ve read their writings with interest, and like most, I feel the better informed for having done it. But after reading this debate several times, I was surprised to find that I didn’t really think that either one of them had it quite right – too many straw men [heroes and villains]. But after writing multiple versions of this post, and then erasing them, I decided that I’m not really capable of transcending my own experience of the major issues covered in this debate and would start by talking about that experience.

In the era that came before my time, psychotic people were removed from society to Institutions originally conceived of as asylums:
    a·sy·lum  (-slm)

    noun.

    1. An institution for the care of people, especially those with physical or mental impairments, who require organized supervision or assistance.
    2. A place offering protection and safety; a shelter.
    3. A place, such as a church, formerly constituting an inviolable refuge for criminals or debtors.
    4. The protection afforded by a sanctuary.
    5. Protection and immunity from extradition granted by a government to a political refugee from another country.

Note that the definition doesn’t say anything about protecting others from the patients, but the opposite. Over time, perhaps a century, those refuges became something else – described as snake pits or warehouses – maintained by State governments. The notion of moral treatment or refuge had given way to confinement and marginalization. I don’t know the origins of de-Institutionalization. It obviously had something to do with the coming of the antipsychotic medication, the deplorable state of our "State" hospitals, and the fiscal burden of maintaining them. Came then the Community Mental Health movement, a federally funded program aimed to move the patients out of the Institutions into the community by providing the necessary support services in the world at large, rather than in the hospitals. I arrived in psychiatry as that program was collapsing as the funding was disappearing.

Even in its inadequately funded days, the Community Mental Health Movement was partially successful. The Asylums disappeared and the patients were, indeed, back in the community. As a psychiatry resident in the first year, I spent my days with the patients who didn’t fit, who were too ill to manage being in open society and were brought or came to the "Emergency Receiving Unit" where I was assigned. In those days, I encountered the writings of Thomas Szasz early from a fellow resident [see Szasz by proxy…]. The model of the times was focused on relapses, episodes of intense psychosis, and the idea was to treat them with medications and return the patients to the community as quickly as possible. It was a laudable goal, but only when it worked. Unfortunately, chronic psychosis doesn’t respond to the medication like the acute illness does, and the patients don’t like to take it for reasons easily discovered if you take only one pill yourself. And so there was a subset of "revolving door" patients who came or were brought back to the hospital regularly. And there was the specter of Tardive Dyskinesia, a potential neurologic consequence of long term medication that you only have to see once to live in terror of causing.

I had not come to psychiatry to be in charge of keeping the streets of Atlanta safe nor to involuntarily treat anyone. I had discovered that many of the patients who came to my office as an Internist were there because of emotional tangles. I could see what was wrong, but I had no idea what to do, so I came to a psychiatry residency to find out. I knew nothing of psychosis – meeting it for the first time in my early thirties in a big city charity hospital in a difficult historical epoch. And that part was, indeed, difficult. I struggled with the same issues I now read about on Mad-in-America. Besides the fellow resident who was Szaszian, I was fortunate to have an advisor, Dr. Jonas Robitscher, a psychiatrist, psychoanalyst, lawyer who had famously written The Power of Psychiatry. While his conclusions were similar to those of Szasz, he was not a "blamer." He was a Civil Libertatian who believed that the right to due process belonged in our courts, not our doctors. As he related it, the historical addition of psychiatrists to the commitment process antedated the coming of medication, and was originally conceived as a reform movement to keep small town judges from "sending away" undesirables to mental hospitals.

Some years later, I had the opportunity to work with a lawyer friend tasked with drafting a new version of our State’s commitment law for the legislature. We changed it to make judicial review mandatory rather than voluntary. On the next iteration, he was able to change it further to take "psychiatrist" out of the mix altogether [see a clarification…]. That was years ago. I believe that’s now a general trend among the States. But what I’m arguing with is not the details. It’s the implication in Whitaker’s debate piece and among those who write on his site that psychiatrists want that power, or hang on to it  [the power to commit] as a tool to retain some kind of hegemony among the mental health disciplines or power over patients. I’ve not seen that to be true. My own complaint is the opposite – that psychiatry proper has ignored the care of the chronic mental patients during the last quarter century just like everyone else – including the other mental health disciplines and governmental agencies. From my perspective, there are no heroes in this story.

While I am much more on the side of Bob Whitaker in looking at what happened in 1980 in terms of the APA and academic psychiatry, I see the forces at work and the motives in a very different way. Both Allen Frances and Bob Whitaker leave out too much of that story for my tastes, and neither addresses what I consider to be the central player in the piece – money. In the 1970s, the major third party payouts by medical insurance in mental health were for inpatient hospitalizations and long psychotherapies. That was not going to continue, and mental health coverage was under attack. That was a major factor in the medicalization of psychiatric diagnosis in 1980 – legitimizing access to third party payments. In that regard, it was successful for psychiatrists and the other mental health disciplines. I doubt it would’ve happened otherwise. What then happened was unexpected, at least by me. The insurance carriers took charge and split up mental health care. The [more expensive] psychiatrists were paid for medical things like medication management. The psychotherapy/counselling was partitioned to other disciplines in carefully controlled and monitored contracts. In-patient reimbursement essentially disappeared. The non-psychiatrists were happy to get access to covered care. Many psychiatrists migrated to medication management. And voila` – that was that. Most referrals to participating psychiatrists came from the now covered psychologists, counsellors, and social workers. It was a symbiosis and many patients/clients spoke of "my psychiatrist" and "my therapist" as an inter-related pair. Psychiatry and the other mental health disciplines needed to change in those days, but the changes that came were driven by economics, and that trend escalated when PHARMA jumped onboard. The chronic psychotic patients were marginalized in the process and the criminal justice system did the only thing it knows how to do – put many of them in jail.

I left those years being involved with the treatment of the psychotic patients feeling much the same way about psychotic illness as that advocated by Dr. Sandra Steingard in the current Mad-in-America CME – antipsychotics for acute psychosis with a constant drive towards as little as possible or none thereafter. I followed some patients with those diagnoses long term and was impressed that a practical psychotherapy tailored to fit the illness was more effective than I might have imagined [see 1. from n equals one  and the posts that follow]. But I was less successful in sustaining zero medication than I would’ve hoped, but I still never stopped trying.

I agree with Robert Whitaker about what happened when Managed Care, PHARMA, academic psychiatry, and the APA got together – it was a perfect storm of the worst kind. Pick any post on this blog to confirm that, though most of mine focus on the corruption involved in the clinical trials and promotion of drug treatments. But I don’t at all agree with his blanket indictment of psychiatry in the plight of our chronic mental patients. Psychiatry was just one of many who ignored them, including the other mental health disciplines, our governments, and our culture. I have nothing but respect for those psychiatrists, psychologists, and social workers who stuck with these patients on the front lines in the face of so little support. But I likewise have little positive to say about the KOLs who pontificated about their care from afar and generated guidelines of questionable scientific validity.

One of my objections to Whitaker’s comments in this debate is his idea that the move to get chronic mental patients out of the prison has a hidden agenda:

    Third, psychiatry’s concern about the imprisonment of the mentally ill is being used by advocates of forced outpatient treatment as a Trojan Horse. The advocates for forced treatment in outpatient settings [such as the Treatment Advocacy Center] argue that forced drug treatment would prevent the mentally ill from ending up in prison, and thus their legislation, which in fact curbs the civil rights of citizens in profound ways, comes cloaked in the rhetorical garb of “humanism.” If we are going to have an honest societal discussion about the shame of imprisoning the “mentally ill,” then it needs to be completely decoupled from that legislative agenda.

    Indeed an argument can be made that the growing imprisonment of the “mentally ill” is yet another example of how our drug-based paradigm of care has failed us. The use of psychiatric medications in our society has exploded over the past 25 years; there is great societal pressure put on people diagnosed with schizophrenia or bipolar disorder to take their medications; and yet we now have this problem of hundreds of thousands of “mentally ill” in prisons and jails.

He has every right in the world to argue with Dr. E. Fuller Torrey’s positions. But his charge is bigger than that. It’s that the efforts of psychiatrists to help chronically psychotic patients or get them out of jail come from hidden, ideologically driven and misdirected motives – tricksters all. As one of his Mad-in-America bloggers said recently:
    "I venture to suggest that most practicing psychiatrists, if pressed, would choose to replace or discard any existing treatment or intervention save one: the power to impose a treatment or intervention."
I suppose that after the misadventures of the last twenty-five years, it would be almost too much to ask for this debate to lead to a consensus, or to step out of what has gone before and come up with a more productive path. I personally find the behavior of the APA and academic psychiatry over these years indefensible, and sure don’t see "the APA as a hapless, sad sack organization — not very powerful, and not at all clever." I wasn’t proud of how anyone acted back then, including the other professional organizations involved. And things have gone from bad to worse along the way. But I find the blanket attribution of malicious motives by Robert Whitaker and those around him unnecessarily divisive generalizations.

Nothing in life prepared me for the complexity of the schizophrenias – the acute psychoses, the chronic forms, the residual or negative symptoms, or even the miraculous recovery seen in some. It took years to get a feel for the many different ways they affect the lives of those afflicted, and there are surprises aplenty – good and bad for even the most experienced clinicians. Looking back over the history of the our various approaches, a clear pattern emerges. Each new reform movement has been built on the failures of what came before and ultimately replaced it – accompanied by great expectations bolstered by small samples of evidence. Over time, the refuges of the Quakers became the asylums of Dorthea Dix became the snake pits of the 1950s. The liberation of de-Institutionalization lead to a lot of desperate homelessness with people living under bridges. Szasz’s Myth of Mental Illness was a factor in inappropriately filling our prisons – just another kind of Institutionalism. The miracle of Thorazine became the cause of Tardive Dyskinesia and Chemical Restraint. I like the current Recovery meme, and the Open Dialog approaches of Northern Finland Whitaker mentions. They are hopeful hypotheses awaiting pilot projects and careful study with an eye to what kind of support is needed to see if they can work in an urban America. And while I am personally an advocate of minimizing the use of antipsychotics, I wasn’t nearly as successful as I wished to be. Medications overused? oh yes. Medications essential? more often than I thought. Likewise, I am a lifelong Civil Libertarian, but have seen many psychotic people who can’t manage with no restraint and end up losing all freedom when they would fare much better with much less restriction.

So as much as I appreciate the observation that the medication for life recommendations are often misguided and support the focus on programs aiming towards recovery, I’m troubled by the messianic feel to Bob’s arguments and more particularly those of many of his followers. They remind me of the naive rhetoric of an earlier age – the age of de-Institutionalization I lived through in times past. I don’t believe there is any simple or universal solution to the societal or personal dilemmas of psychotic illness. We make a little progress, then way overdo things – applying local successes too widely and step all over ourselves in the process. We see the therapeutic zeal of the past as the new evil of the present and start swinging at windmills. And we end up throwing out the babies with the bathwater as if we don’t know how to do anything else. The people with the last great solution and those promoting the next great solution go to war rather than working towards a meeting of the minds or generating test programs that might scientifically resolve differences. So, to be perhaps too candid with my words, I had that oh-shit-here-we-go-again feeling reading this debate between two people I really respect. I want them to do it again without the platitudes or preaching to each other, and include others from both sides of this debate. I want them to visit the jails together and take each other seriously. And I want those who weigh in who aren’t around psychotic people to spend time with as many as they can find. It’s time for a change [and these are two of the people who are going to influence that change], but I’m worried we won’t be careful enough in building a broad-based change that will iterate towards programs that endure and grow – that people will just keep talking past each other. Heroes and villains may be the stuff of psychotic delusions, but they have no place in the formulation of our policies going forward…
  1.  
    Bernard Carroll
    December 7, 2014 | 3:12 PM
     

    There are so many issues here that just a brief comment might be best. First, there is no denying the reality of major mental illnesses – the things I have called the A-list. Dr. Mickey’s term for these is showstoppers. Those affected by these conditions are among the most gravely ill patients on the planet, and critics who have not had the responsibility of treating them should not be quick to opine with facile generalizations.

    Second, unrealistic expectations always lead to bitter disillusionment: when DSM-III came along the appearance of authority was not matched by the validity or even the reliability of the named disorders. Here psychiatric medicine shot itself in the foot. In the ensuing disillusionment, physicians and patients alike lost sight of the fact that much of medicine is a work in progress, with just a few hard certainties – that is why we operate pragmatically with best-evidence, probabilistic models. Many critics see the failings of psychiatric medicine while they over-idealize the accuracy and efficacy of non-psychiatrist physicians – they should just look at the dismal data on accuracy of diagnoses of Parkinson’s disease for a correction to that cognitive bias.

    Third, it is not productive for a Robert Whitaker to engage in casuistic arguments while imputing bad faith motives to those who don’t agree with him. I agree with Dr. Mickey that Whitaker’s comments on the prisons issues had that quality.

  2.  
    James O'Brien, M.D.
    December 7, 2014 | 6:49 PM
     

    I’d add to that list the classification of headaches and the efficacy of knee meniscectomies and PSA screening and lipidology management. Much of general medicine is more of a miasma and work in progress than we would like to acknowledge.

    I don’t agree with Dr. Frances on some issues, such as gun control, but on the issue of DSM and critical psychiatry he has been spot on. The APA which is often so sanctimonious about stigma, didn’t hesitate to label him “dangerous” which is their way of saying dangerous to their entrenched interests.

  3.  
    Robert Whitaker
    December 7, 2014 | 7:42 PM
     

    Just for the record, I wasn’t trying to attribute malicious motives to psychiatrists concerned about the imprisonment of people with mental disorders. My point here was that the advocates for forced outpatient treatment (Treatment Advocacy Center) use this issue as a justification for the legislation, with the thought that such laws will prevent this problem, and I was trying to argue that if we as a society really want to focus on the problem itself, of having the imprisoning of the “mentally ill,” then we need to focus on that problem alone, and decouple it from the emotional issue of forced outpatient treatment. I was trying to write about how we could think more clearly about the problem.

    Also, I think if you read Anatomy of an Epidemic or the blogs I have written (and I don’t blog that much on madinamerica, and even this debate was occasioned by Allen Frances,) you won’t find any instance of my assigning of malicious motives to psychiatry. I think psychiatry as an institution displays some remarkable cognitive dissonance at times, but that is quite different from having malicious motives.

  4.  
    December 7, 2014 | 8:20 PM
     

    Robert,

    Thanks for the comment. I appreciate the clarification. Certainly, the jailing of mental patients is a standalone issue in my mind. And I accept that the attribution of malice to psychiatrists that frequently populates MadInAmerica’s pages may not represent your own attitudes, but there’s little way for a reader to know that. I guess we see it as your site.

    It may not be apparent in this blog post, but I am a general supporter of your positions, including the treatment of psychosis with as little medication as possible or none. My experience has been that it’s an approach that can be successful when there is a strong matrix of support. There are those who can’t tolerate none, so I see it as a desirable goal, but not a mandate.

    Your comment about the institution of psychiatry’s “cognitive dissonance” is more forgiving than I would be.

  5.  
    adam dickes
    December 8, 2014 | 8:16 AM
     

    Here’s one pertinent example of the sort of disingenuous arguments referred to by Robert Whitaker, which generally blame the current incarceration of mentally ill on a lack of medication compliance:

    http://www.huffingtonpost.com/dj-jaffe/behind-the-gates-of-gomor_b_6238804.html

    Not to say that this isn’t a complex and difficult issue with two sides, as the OP makes very clear, but only that some people make a very direct causal connection between compliance and incarceration in a way that seems to further their own agenda on medication.

  6.  
    December 8, 2014 | 3:58 PM
     

    You are right about the role of money, and EVERYONE is guilty of that play, including the providers. Psychiatrists who charged ridiculous rates for “therapy” allowed people to come in and undercharge for alleged equivalent therapies, thus dumbing down the role and impact of psychotherapy to reinforce today the primary play is “just medicate and talk to me later”, literally.

    I wrote about this piece in MIA Saturday night, my take is a bit different than your as I see the patriarchal role of psychiatry to be so outdated, and you can’t force people into care and get majority cooperation. Punishment will never encourage cooperation and alliances, once again how too many in forensic psychiatry just don’t get it at the end of the day.

    Again, you have to ask your colleagues who belong to the APA how they can be a member and truly care about the state of psychiatry simultaneously.

    Being a doctor and belonging to the APA are as incongruent a relationship to have in the health care field. But, is that dead dog carcass even recognizable now?

  7.  
    soulful sepulcher
    December 8, 2014 | 9:53 PM
     

    It’s imperative for people to read “Mad In America’ or the other one to understand where the author is coming from and remember he is an investigative journalist, who writes after fact-checking and is evidence-based. The fact remains, that when his recent book was released in the Spring of 2010 it ruffled major feathers– BIG PHARMA– after all if Soteria houses and the studies about people actually lving quality lives OFF of antipsychotics were the norm, then PHARMA would be out of the psych med biz– as would psychiatry!

  8.  
    soulful sepulcher
    December 8, 2014 | 9:55 PM
     

    PS– meaning that many people wanted Bob to go away along with his book– he was NOT allowed to go to the APA that year. Hmm, why not>??? $$$$$ Truth is truth! keep on telling it Bob.

  9.  
    Bernard Carroll
    December 9, 2014 | 1:19 AM
     

    Soulful Sepulcher is correct in stating that Robert Whitaker is seen as “an investigative journalist, who writes after fact-checking and is evidence-based.” I am beginning to doubt the soundness of his investigative journalism, however. I spent some time today checking three of his website entries about issues with antipsychotic drugs. After a reading of the original publications, in each case Whitaker’s rendering of the studies left a lot to be desired. His pattern is to present some of the data selectively and tendentiously, but to gloss over other important findings, as well as qualifications stated by the original authors. That is to say, his descriptions are not appropriately nuanced or complete. His summaries serve his desired narrative but I would not rely on them for a good understanding of the research. I plan to return to this when I have looked at more examples from his website.

  10.  
    berit bryn jensen
    December 9, 2014 | 4:02 AM
     

    As the present chair of an organization that was happy to cosponsor Robert Whitaker’s recent and very successful talks in Oslo, We Shall Overcome, I’ve had years of experience living with and among people who have been psychotic, on the verge and beyond, those who have recovered, though scarred by treatments and hurtful memories of degradation meeted out by the workings of western society. Reading the literature for thirty years, questioning members of the guild of selfappointed medical experts, the psychiatrists, I’ve found textbooks retreading beaten tracks, and many psychiatrists surprisingly unwilling to engage in the issues raised on the admirably open and farreaching blogs of dr Nardo and Robert Whitaker, relevant, couragous, honest reflections on what psychiatry and psychiatrists have wrought and possible ways out of the present mess. I’m happy to report that the reception of Robert Whitaker was most respectful and gracious at the psychology department of Oslo University. Members of the psychiatric profession were invited to a panel discussion with Robert Whitaker and Peter Goetzsche. The Norwegian guild declined. Trust in medical doctors and psychiatrists must be earned, judged on their honesty and the results of their interventions. I do not know if psychiatry can reinvent itself and become healing. I doubt it. The corruption is deepseated. The mainstream thinking shallow and unscientific. The outside forces for change are tearing down the defenses. Neither ingratiating approaches nor the angry arrogance of others can hinder an idea whose time has come.

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